Our Team

PRESIDENT
Gabriele BERTI
Gabriele was born in Florence, Italy, in 1971. His lifelong passion for photography evolved into his career. Equally passionate about travel, he seeks to connect deeply with different cultures and traditions.
He strives for meaningful, empathetic experiences, especially in challenging environments of extreme poverty and hardship.
Gabriele dedicated over a decade to collaborating with an NGO on international cooperation projects in Africa.
In 2018, his family started facing Huntington’s Disease with his mother’s diagnosis, and soon after, he tested positive for the gene. This inspired him to create photographic projects aimed at raising awareness about the disease, leading to the founding of our non-profit association.
gabriele@thatdisorder.org

VICE PRESIDENT
Selene CAPODARCA
She holds a summa cum laude degree in Pharmaceutical Chemistry and Technologies from the University of Florence and has over 25 years of clinical development experience, having been deeply involved with the HD community since 2013.
Her believe in the profound power of human connection, combined with her passion for art became the driving force behind the creation of That Disorder – Global Human Community.
She finds deep meaning in the strong bonds she creates with people and families she meets around the world. These connections are thin, yet unbreakable, threads transcending cultural boundaries.
Selene is also the Director of the Factor-H funded ‘Street Art for HD’ project, which uses murals as a powerful medium to increase the visibility of HD-affected communities.
selene@thatdisorder.org

TREASURER AND ADVISOR
Giovanni CANCELLIERI
Giovanni grew up in an artistic environment, with his father being a sculptor and painter. This upbringing fueled his curiosity for all forms of art and enriched his sensitivity. He was also a member of an international polyphonic choir.
He graduated in Medicine and Surgery and has worked as a stomatologist and aesthetic doctor for many years in his private medical practice. He also volunteered for a medical mission in Sierra Leone, Africa.
Giovanni became acquainted with Huntington’s disease through his friend Gabriele Berti and decided to deepen his knowledge of the disease and to support Gabriele’s projects.
giovanni@thatdisorder.org

SCIENTIFIC DIRECTOR
Camilla FERRARI
Dr. Camilla Ferrari graduated summa cum laude from the University of Florence in 2006 and specialized in Neurology there in 2012.
She earned a PhD in Neuroscience through a collaboration with the Karolinska Institute in Stockholm, where she was also a visiting researcher. After her European PhD in 2015, she held research grants at the CNR in Pisa and the Don Carlo Gnocchi Institute in Florence. Her clinical work was at Careggi University Hospital and San Giovanni di Dio Hospital in Florence until 2017.
Since 2018, she has been a Physician Researcher in Neurology at the NEUROFARBA Department of the University of Florence and heads the Rare Diseases Clinic of the Neurology Unit at Careggi University Hospital.
She is part of key Italian and European research groups for Huntington’s disease and dementias and has participated in many clinical trials for these conditions.
She lectures in Neurology for medical and sports science programs at the University of Florence and is an Associate Professor of Neurology.
camilla.ferrari@unifi.it

U.S. AMBASSADOR
Gail OCHENKOSKI
Gail graduated from F.I.T. in New York City and has had a career in the arts ever since. Her passion for art as expression, inspired her to create the art program LOVE&JHD – a global program designed with That Disorder, to bring art into the lives of those with JHD and their families, who face the daunting task of navigating this disease with grace, and most hopefully, joy. Gail’s family was first introduced to Huntington’s Disease in 2017 when her daughter, Carolyn, was diagnosed with JHD, and Carolyn’s father subsequently tested positive for HD. Since then, Gail has dedicated her time and efforts to understanding the medical world, educating herself, and exploring resources available through various HD organizations around the world. Working with T.D. has allowed her to focus on giving voice to JHD families, through visual arts, when sometimes a voice is so hard to hear.
Dedicated to Carolyn J. Goracy 7/10/1992 – 1/26/2024
gail@thatdisorder.org

SOCIAL MEDIA COORDINATOR
Casey GRASHAM
Casey joins That Disorder – Global Human Community with a passion for the Huntington’s Disease Community, gaining knowledge of the disease by a chance caregiving assignment for a young woman with Juvenile Huntington’s Disease. As a veteran professional caregiver of 13 years, Casey’s new assignment introduced her to this disease for the first time, and more importantly, to her new best friend and kindred spirit, Carolyn Josephine Goracy. Casey and Carolyn spent 3 years together, growing in love, experience, and a passion for all things fun!  Now a part of the HD family, Casey brings with her an understanding of young individuals with JHD, and in honor of her friend Carolyn, strives to help spread awareness and hope.
info@thatdisorder.org